Family of Archie Battersbee vow to call for 'change’ after 12-year-old's death
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The 12-year-old died on Saturday in the Royal London Hospital in Whitechapel, east London, after weeks of legal wrangling.
He was being kept alive by a combination of medical interventions, including ventilation and drug treatments.
Doctors treating the schoolboy for the last four months declared Archie to be “brain-stem dead”, prompting a lengthy but ultimately failed legal battle by his family to continue his life support treatment in the hope he would recover.
In recent days, his parents had made bids to the High Court, Court of Appeal and European Court of Human Rights to have him transferred to a hospice to die, but these were rejected.
Barts Health NHS Trust had said Archie’s condition was too unstable for a transfer and that moving him by ambulance to a different setting “would most likely hasten the premature deterioration the family wish to avoid, even with full intensive care equipment and staff on the journey”.
In a statement, released through the Christian Legal Centre, which has been supporting the family’s case, the family said: “Yesterday we lost our beautiful boy, Archie. He has fought against all the odds since April, and we are so proud of him.
“We are thankful for the huge amount of support we’ve received from so many different people. We are grateful to our legal team and others who have stood with us as we have faced these difficult challenges.
“We want something good to come out of this tragedy and the horrendous experience we have been put through by the system.
“No parent or family must go through this again. We have been forced to fight a relentless legal battle by the Hospital Trust while faced with an unimaginable tragedy.
“We were backed into a corner by the system, stripped of all our rights, and have had to fight for Archie’s real ‘best interests’ and right to live with everything stacked against us.
“This has now happened too often to parents who do not want their critically ill children to have life-support removed.
“The pressure of the process has been unbelievable.
“There must be an investigation and inquiry through the proper channels on what has happened to Archie, and we will be calling for change.”
On Saturday, Alistair Chesser, chief medical officer at Barts Health NHS Trust, said: “Archie Battersbee passed away on Saturday afternoon at The Royal London Hospital after treatment was withdrawn in line with court rulings about his best interests.
“Members of his family were present at the bedside and our thoughts and heartfelt condolences remain with them at this difficult time.
“The trust would like to thank the medical, nursing and support staff in the paediatric intensive care department who looked after Archie following his awful accident.
“They provided high quality care with extraordinary compassion over several months in often trying and distressing circumstances.
“This tragic case not only affected the family and his carers but touched the hearts of many across the country.”
Ms Dance has previously called for reform through “Charlie’s Law”.