First support group set up in Burnley for rare syndromes

The support group will meet for the first time on Saturday
The support group will meet for the first time on Saturday

A support group for a group of sydromes has been set up in Burnley for the first time.

The Ehlers-Danlos syndromes support group is holding its first meeting in Burnley for local sufferers and their families this Saturday.

Ehlers-Danlos syndromes are a group of genetic connective tissue disorders which are currently classified in a system of thirteen types. Despite this grouping and their common name, each type is a distinct condition caused by a different gene mutation.

The meeting will be held at Pendleside Hospice, Colne Road, on Saturday from 10am until noon.

For more information visit http://www.ehlers-danlos.org/