First support group set up in Burnley for rare syndromes
A support group for a group of sydromes has been set up in Burnley for the first time.
The Ehlers-Danlos syndromes support group is holding its first meeting in Burnley for local sufferers and their families this Saturday.
Ehlers-Danlos syndromes are a group of genetic connective tissue disorders which are currently classified in a system of thirteen types. Despite this grouping and their common name, each type is a distinct condition caused by a different gene mutation.
The meeting will be held at Pendleside Hospice, Colne Road, on Saturday from 10am until noon.
For more information visit http://www.ehlers-danlos.org/