Friends rally to support brothers with cystic fibrosis

Brothers Noah and Jayden McGibbon who both suffer from cystic fibrosis.
Brothers Noah and Jayden McGibbon who both suffer from cystic fibrosis.

A pair of young brothers from Burnley who both suffer from cystic fibrosis are a step closer to getting state-of-the-art physiotherapy vests thanks to the generosity of schoolchildren.

Noah McGibbon (9) and little brother Jayden (3) both have the genetic condition. They must attend regular hospital appointments, take a daily dose of medication and vitamins and have physiotherapy twice a day to manage the condition, which affects mainly the lungs but also the liver and pancreas.

Staff and children at Brunshaw Primary School, where Noah is a pupil, have helped to raise £723 to help towards the vests which cost around £7,000.

Noah’s football team Sycamore United have also raised hundreds of pounds for the boys. Brunshaw Primary School held a non-uniform day to generate the cash.

Mum Lisa (30) said the vests would have a massive impact on the boys’ treatment.

“It’s a more intense form of physio. At the moment me and my husband do the physio but it’s really hard because we have to do it on both boys, half-an-hour on one and then half-an-hour on the other. But if we had the vests it would be so much easier, one of the boys could wear it while the other one has physio.

“They take a lot of medication every day and they have to have a lot of physiotherapy. Last July they both contracted a really serious bacterial infection but they each had a different infection so we had to try and avoid cross contamination. They’ve been on nebulisers twice a day for the last few months.

“They’ve both had three months clear of infection now so hopefully it’s onwards and upwards. It’s just been a horrendous six months.

“But everyone has been great and we’re really grateful to the school for raising the money.

“Noah’s friends and their mums asked if they could help by raising some money.”

A fund-raising night will take place at the Railway Club, Rosegrove, on March 29th. The event is sold out but anyone interested in offering raffle prizes can contact Lisa on 07909523182.