Raising funds for Burnley General Hospital in memory of baby

Joanne Edwards, who is raising money for Burnley General Hospital, with her godson Charlie Norbury (s)
Joanne Edwards, who is raising money for Burnley General Hospital, with her godson Charlie Norbury (s)

A woman is raising money for Burnley General Hospital as a tribute to the baby she lost half way through her pregnancy.

Assistant headteacher Joanne Edwards (30) also wants to raise awareness of the chromosomal abnormality Patau Syndrome.

The disorder, which is also known as trisomy 13, carries a high mortality rate with multiple congenital abnormalities.

Babies with the condition rarely survive and the very few that do suffer severe physical and mental impairment.

Joanne has started to make ribbons and wristbands, which she is selling to raise funds, and her godson Charlie Norbury (5) recently completed a mile-long fun run which raised more than £100. Charlie’s uncle, Tom Owens, has also completed a host of sponsored sporting events and a coffee morning collected £700 for the cause.

So far, Joanne has raised almost £2,500 and plans to raise more so that a second Serenity Suite can be installed at Burnley General. The Serenity Suite is currently used by mothers who are poorly during pregnancy or parents who lose a baby.

Joanne, who plans to register the group as a charity, said: “In most cases babies with trisomy 13 miscarry before 12 weeks.

“The disorder is not compatible with life and those babies who are born alive, only usually survive a few days.

“I tried to find out more information about trisomy 13 but there was nothing out there. There were no awareness ribbons so I started making my own.

“I’ve sent them out to America, Australia and Canada. Since I set up the Facebook page it has just spiralled.”

For more information about trisomy 13 or to help with fund-raising visit www.facebook.com/hopeserenitytrisomy13awareness to help promote the fund-raising effort and the condition.