Brave Burnley schoolboy’s cystic fibrosis mission

Lisa McGibbon with her sons Noah and Jayden.'Photo Ben Parsons
Lisa McGibbon with her sons Noah and Jayden.'Photo Ben Parsons

A brave schoolboy from Burnley who suffers from cystic fibrosis is to put on his running shoes to raise money for others with the disease.

Noah McGibbon (8) was diagnosed with the genetic condition as a baby and his little brother Jayden (2) also has the illness.

They must attend regular hospital appointments, take a daily dose of medication and vitamins and have physiotherapy twice a day to manage the condition, which affects mainly the lungs but also the liver and pancreas.

Noah also has a saline nebuliser to clear his airways of mucus and both boys, who have the condition because both parents carry the gene, are at risk of frequent lung infections. Noah, who lives with mum Lisa, Jayden and dad Vincent (32), will take part in the Children’s Manchester Run at the end of May.

Noah will run a mile in return for sponsorship for the Cystic Fibrosis Trust.

Already Lisa (29), who is taking part in the 10km Great Manchester Run the same weekend for the charity, said he has been beating her in training but said Noah, a pupil at Brunshaw Primary School, is taking it all in his stride. “It’s a big thing for him to run a mile with his condition because it affects the lungs. But we’ve been training together and he just outruns me.”

Noah plays football every day and is a member of Sycamore United Football Club where he trains twice a week. The club has also pledged to sponsor Noah.

“Both boys cope really well, they take it all in their stride. When we had Noah we didn’t realise cystic fibrosis was in the family and me and my husband are both carriers. With two parents as carriers there is a one in four chance the baby will have cystic fibrosis.

“If one of the boys gets a chest infection they can pass it back and forth between them so we’ve really got to keep our wits about us. Noah has just had two weeks of intravenous antibiotics which I gave to him at home. We are really proud of him, but he doesn’t think it’s a big deal.”